I woke up thinking about the two transplants that John has ahead of him. I just seems so overwhelming to me this morning. I am always on edge waiting for the next curve ball to be thrown and I wonder each time that one comes, will I be able to catch it? Our transplant oncologist wants to put John on Thalidomide as a maintenance drug between the transplant here and the transplant in Seattle. Our provincial drug plan does not cover it. It is very expensive. VERY VERY VERY From what I could gather from on line research, it could cost up to four thousand dollars a month. We were given application forms to receive compassionate free drugs from the pharmaceutical company that supplies the drug. Again we have to fill out forms divulging all our personal financial information. It feels so invasive. They even want to know how much is in our checking accounts. I worry that the little that we have managed to stash for the foreseen and unforeseen emergencies will disqualify us. I worry that they will decide that perhaps we should sell our home or that our car is too fancy. This is the company that as soon as they learned that the drug was valuable in the treatment of Multiple Myeloma raised the cost of the drug 800% over the last five years or so. I just wonder how much compassion that we can expect from them.
John had his bone marrow biopsy on Monday. We should be getting the results of that early next week and know how well all those chemical cocktails worked. After reviewing that with Seattle he will probably be admitted into the hospital at the beginning of June for his second auto transplant, that is the one using his own cells. They figure that we will be in Seattle at the end of July or the beginning of August.
Good news! Our passport applications are in and we should get them within two weeks. That is one load off my mind. So, for now, I just have the above mentioned load. When I think about it, it seems to me that God does know how much of a load that I can carry at any given time and I sure do need to remember,that I am not carrying the loads all by myself.
Thursday, May 14, 2009
Here We Go Again
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4 comments:
Thanks again for the update. We really appreciate it and you are always in our prayers. I can't imagine how hard this journey has been for you all!
We will join you in prayer John and Chris, and we wont let up until this is finished. The drug company will be compassionate and donate the drugs for as long as you need them
I think you should put all your money between your matresses and then you won't have any in your bank account and they'll give you the drugs :)
Praying for Miracles!!!
Praying for you both that your load will feel lighter and that the drug company will take their fare share of it.(Greedy guts that they are). Where is the Saskatchewan government in all this I'd like to know...but I don't need to burden you with any negative thoughts about things that are not in our control. Take good care!
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