We were hoping that we could avoid the hospital. It would have been nice to have given it a pass, but hospitals sure are nice when you need them. John's kidneys have taken a dislike to the treatment they have been getting. One of his anti-rejection drugs is not very kidney friendly, and top that off with radiation, and all of those new cells that he got yesterday, well..... Just not happy. His creatinine levels are quite elevated and his uric acid and potassium is very high. He is not peeing either.
He will have to stay in the hospital until they get all of this stabilized. He may have to have dialysis for a little while just to give his kidneys a break. I have been told that this will not be a permanent thing. They are going to try to avoid that.
He did have a violent bout of vomiting this afternoon shortly after getting the dirt drink. They give him a horrible cocktail to reduce the potassium in his system. He burst some of the small blood vessels in his face doing this. Now he has to drink some more to replace what he threw up.
He is very tired. Yesterday was a long, long day, and we really did not get a full nights sleep last night.
Ordering meals is done very differently at this hospital. They have room service. You can order food whenever you want off of the menu which is bigger than most restaurants. You call the order in and it gets there within 45 minutes. You can order from early morning until 7:30 at night. I am thinking that maybe the patient gets billed, but I am not sure as there were no prices on the food. The hospital is nice and even the toilet paper is good. It is not the cheep scratchy stuff of back home.
I am feeling tired and stressed. It did not help things to have the taxi dispatcher yell at me and hang up on me because I did not know where to find the account number on the voucher I was given by the Cancer Alliance. The person on the phone was not only rude, but intimidating. It made me cry, but really it was just the straw that broke the camel's back. When I called back again I got a different person who was somewhat better, although by that time I had figured out the right information. The cab driver was appalled at how I was treated and gave me a number to call and complain. He was also mad because stuff like that can affect his livelihood. For my part, I really have better things to do than phone and complain, but I will do it for the driver's sake. He said that this is not the first time this has happened and if people phone it may get fixed.
O.K. I am tired. I am not going to edit this, well maybe tomorrow. Goodnight all.
Thursday, September 10, 2009
Hospitalized
Posted by
Christine
at
11:24 PM
Labels: Discouragement, Feeling Sick, Seattle
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9 comments:
I'm so sorry, Chris. I wish I were not sick right now because I am so sure you could probably use a friend up there for some moral support and it irritates me that I can't comply with that. Take this virtual hug from me and know that I'm thinking of you guys and hoping this will all pass quickly and John will be on the road to recovery.
((((((((((((((((((((((((((((((((((((((((((((((((((((HUGS))))))))))))))))))))))))))))))).
I know it's not as good as the real thing, but it's all I can do right now. Try not to stress out. Maybe get some bubble bath and take a bubble bath followed by a hot shower.
I love you guys and hope things are going better by tomorrow.
More ((((((((((((( hugs )))))))))))
I'll edit it. If you give me the phone number I'll call and complain too. :) I'd LOVE to have someone to yell at.
I saw it on Facebook so I hopped over here to see what's going on. I hope he'll get past this real soon. Big big hug. Sending you good vibes. Take care.
I wish I could come out there and be with you guys. Give each other a big hug from me.
Praying that John's kidneys will start to function normally and that he will be able to be at home with you. Also praying for strength and good health for you...and "The Invisible Mo". It would be so great if she could come and be with you.
You do have many people praying for you.
Big (((hugs))) and much love!
You guys are in our prayers! Hope you both feel better today! Love you lots! Jen and Kelly
David told me what was happening last night on the drive home. We prayed for you and for John. We will continue to pray. Love you both.
I know I seem to say this all the time and it seems that this is all I can say..I'm praying for you. I can't imagine how hard this must be for you guys especially when you are all alone but the love and prayers of so many people are there in spirit! Sure wish we could do more.
We love you guys!
I want to be there so bad. I wish I could have just stayed in my car after work and just kept on driving all the way. No one can take car of papa bear like you can. I love you. Give dad a big hug from me.
we're praying too. I'm with Becky - I'll call and yell. You've got a family full of Brauns - I'm sure you could find a lot of takers :)
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